Saturday, November 19, 2011


A few weeks back I had a consult with Melanie Silverman
 to reassure me I'm on track with our meal plans.  As many of you know, because Joe has PWS the food we choose can be tricky.  Tricky because our society is so focused on food.  Not good clean food but junk food.  BTW - I'm going slap the next person that offers to feed my 13 month old a piece of cake.  NO 13 MONTH OLD SHOULD BE EATING CAKE! Even if they don't have PWS.

Back to the consult...Melanie is great.  She gave me some good tips that I already knew in the back of my mind, but just needed that confirmation.  Melanie said that we need to feed Joe what we eat.  OK, guess that means momma is going to be eating better.  Here's an example of dinner last Thursday

Salmon & Pea Puree
1  Wild Alaskan Salmon fillet
1 bag of frozen peas (defrosted)
1 garlic clove
1/4 c mint
Salt Pepper
olive oil
Parmesan Cheese

Heat olive oil in med/high pan.  Rinse salmon, pat dry, salt & pepper (i didn't salt/pepper Joe's piece).  cook skin side up for 5 minutes, flip and cook for another 1-2 minutes.  Fish is done!

Add peas, mint, garlic, salt/pepper (optional for baby) to food processor.  Add olive oil while pureeing.  Remove and add Parmesan cheese.

I put a big dollop of the pea puree on the salmon - yum!

Thursday, November 17, 2011

Mommy therapy

It's been months since my last entry.  A friend reminded me recently the therapeutic benefits of writing.  It's half therapy and half my responsibility to document our lives with this amazing kiddo.  I want recently diagnosed parents to see a happy and strong kid that happens to have PWS.  I want us to remember how skinny he was and how far we've come in 12 months.  All of a sudden my tiny little baby is a full on kid.  That's why I need to write.

It's strange but I get excited to learn about a new PWS family.  Now don't get me wrong, I pray for a cure and that no child ever experience PWS.  But since we're not there, I like helping families through the haze of the first months.  Maybe it's a pay if forward thing?  I was lucky to have great people help along the way when we were so green to this crazy syndrome.  Perhaps helping is like writing and becomes a therapy.