It's been months since my last entry. A friend reminded me recently the therapeutic benefits of writing. It's half therapy and half my responsibility to document our lives with this amazing kiddo. I want recently diagnosed parents to see a happy and strong kid that happens to have PWS. I want us to remember how skinny he was and how far we've come in 12 months. All of a sudden my tiny little baby is a full on kid. That's why I need to write.
It's strange but I get excited to learn about a new PWS family. Now don't get me wrong, I pray for a cure and that no child ever experience PWS. But since we're not there, I like helping families through the haze of the first months. Maybe it's a pay if forward thing? I was lucky to have great people help along the way when we were so green to this crazy syndrome. Perhaps helping is like writing and becomes a therapy.