Last week we visited Michelle from Pinkletoes to update Joe's pictures. He's 5 months now and it's time to capture his new chunkiness. http://pinkletoesblogstalker.com/2011/03/a-little-visitor.html
Michelle visited us at our home when Joe was just 5 days old...now he's 5 months! I love the that he's finally filling out. The general public now guesses his correct age. A little old man at the coffee shop last Saturday said, "what is he 4 or 5 months?" I was so excited that he guess right. For so long I would fib about Joe's age. I was just tired of people saying, "he's so little, was he a premie?" NO - he has PWS and doesn't eat well. Probably not the most PC response. I'm still working on my elevator pitch...
My thoughts on why he's doing so well
1. We're rocking on the therapy. As a supplement to his normal OT, PT, XT we've been experimenting with ABM. Joe loves the therapy http://www.anatbanielmethod.com/
2. HGH arrived last week. I actually haven't noticed any significant difference in the last few days but i'm hopeful. Thanks to Pfizer for the bridge program.
3. The haberman nipple saved our life. Joe never needed tube feedings but like all the others, a very poor feeder. We've had him on a strict feeding schedule of every 3 hr (except nights). He's been packing on the oz's ever since we started with the haberman.
4. Lots of loving from friends and family. I'm constantly amazed with all the support. We're super lucky to have so many people lovin' on baby Joe.